Image: Esiason.org

I knew about Gunnar Esiason more than 15 years ago because of my work with Samsung. His father, Boomer Esiason, one of the most famous football quarterbacks ever, was deeply involved in Samsung’s charity, The Four Seasons of Hope, which helped raise money for cystic fibrosis. 

Gunnar was diagnosed with CF when he was two years old. The year was 1993. The Boomer Esiason Foundation (BEF) was formed almost immediately to find a cure for the disease. Gunnar, as well as Boomer, has played an active role in making the world understand CF, a disease of the respiratory and digestive systems.

From time to time, I read courageous stories about Gunnar in the press. Many of the stories talk about how he has managed to lead an active life despite the time he spends each day treating his disease. I recently received a mass email from Gunnar (I must be on the BEF mailing list) saying he decided to do a “Living with CF Go Pro Series” which will shed more light on his day-to-day experiences.

I really wanted to share it with you because it’s  a slice of life that you don’t see everyday. Please click on the video above to see Gunnar in action and scroll down to read his thoughts.

  
Gunnar’s words: “It seems like I get an email just about every week from a parent telling me that his or her child has just been diagnosed with the cystic fibrosis. The tone of each email is the exact same. There’s some mix of confusion, frustration, anger, sadness and determination. I sympathize with parents who find out that their son or daughter, the light of their lives, will be faced with an uphill journey through life. I also applaud these parents for taking a very brave step into the unknown. It takes a lot of strength to start asking questions about something as serious as cystic fibrosis.

“I can’t even imagine how vulnerable my parents must have felt when I was diagnosed, but I know the resources and friends available to them at the time helped to reassure my parents – so I try to pay it forward. 

“Since this past August, I have been capturing GoPro footage of my day-to-day life with CF, and today I am going to release the first part of my new series Living With Cystic Fibrosis.
I want to show people how active I can be despite undergoing hours of treatments each day; despite taking over 50 pills each day; despite occasionally having an IV placed for several weeks at a time. I want to show how being compliant with my medications allows me to have all of these great opportunities. I want to show the parents of a newborn who was recently diagnosed with cystic fibrosis that their child will grow up to live the life that I am capable of living.

“Enjoy my first foray into filmmaking.
***I do not own the rights to the music in the video. This specific video purely for non-profit educational use.”

Labradoodle or fried chicken?

Shar pei or towel?

Dog or bagel?

 Dalmatian or ice cream? 

I’m having some fun. Look at the collection of some wild and crazy photos of me. They were created  by the filters on Snapchat.

Snapchat is an app that allows you to send self-destructing videos and pictures to other fans. It can only be viewed for a few seconds. The whole idea is that nothing gets stored. Once the receiver views the material, it’s gone.

Sounds a little wacko, but teenagers love it.

You can also add a caption or doodle over a photo on Snapchat. The app has all kinds of fun options. Many folks want to add a video or photo to their “story,” a 24-hour collection of your photos and videos, which they then can broadcast to the world or just your followers.

Maybe, you just have to be young to appreciate this.

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Hazel In Rehearsal

This is a brief inside look at the show Eliot and I are involved in. Hazel is opening in Drury Lane Theatre & Conference Center, Oakbrook Terrace, IL, on April 6th. Congratulations Ron Abel, Chuck Steffan! Lissa Levin Guntzelman, Klea Blackhurst, and Joshua Bergasse.